Danielle Fujii, Creator of zDen
”Sleep is that golden chain that ties health and our bodies together.” Thomas Dekker
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Laura Palmer and the Shine Syndrome Foundation
SHINE Syndrome, also known as DLG4 Synaptopathy, is a very rare neurological disorder that affects a small number of individuals around the world. The symptoms of this condition include developmental delays, autism, ADHD, disordered sleep, hypotonia, epilepsy, plus bone and/or brain abnormalities. Due to its rarity, SHINE Syndrome is often undiagnosed or misunderstood, leaving families searching for answers and support. Laura Palmer's youngest son, Nolan, was diagnosed with SHINE Syndrome in 2017. She is the founder and president of the SHINE Syndrome Foundation, which offers support to families and searches for opportunities to fund research. Nolan's rare genetic variant was discovered at Harvard, although he is a patient at Cincinnati Children's Hospital. The sleep lab at Cincinnati is currently creating a mouse model of her son's variant, thanks to the expertise of Dr. John Hogenesch. After years of genetic panels, they were finally accepted into a study at Harvard